An open letter to Neurologists – The irrelevancy of names

It doesn’t matter what type of movement you call it:

Dystonic, Dyskinesic, Athetoid, Functional, Choreic, Movement disorder, Conversion, Dyskinetic, Clonus, Jerk, Tic, Basal Ganglia disease,

 

It doesn’t matter what your textbooks call it:

Dopa Responsive, Primary, Secondary, Tardive, Paroxysmal, Psychogenic

 

What matters, is our experience of it

…….and in the main you have very little knowledge of our experience of it

…..our lives

 

….and then you decide:

 

With this label you get this

With this label you don’t

With this label you get these benefits

With this label you don’t

With this label you get compassion

With this label you don’t

 

There are too many stories unheard

There is too much pain caused by your labels

 

You must open your minds, your eyes, your hearts

And close your textbooks

 

You must hear us

If you want to help heal us

 

With Love

Jacqueline

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